Saturday, November 8, 2008

Thoughts...

This week has been extra stressful it seems. Just when I think I have a handle on things, a wrench gets thrown into the spokes. I don't know why but it seems as though when I expect things to happen, they don't. When I don't expect them to happen, they do. I can't even find a word to describe that feeling. Weird.

I spent many hours calling Grayson's doctors to let them know of the latest development in his medical history. I wanted them to know and also I wanted assurance that the medicines he is on right now would still be alright for him to take. Considering the fact that medicine for his migraines is also predominantly a blood pressure medicine and one of the medicines for his asthma can cause the heart to speed up, I just wanted to check. Both the allergist and the neurologist called back with assurance that he could keep taking his meds as prescribed, but both want to be informed of the findings from the cardiologist. I had to call the pediatrician to get the the referral to go to the pediatric cardiologist, which was fine...I had to call the cardiologist to schedule the appointment first so they could fill out the referral. The cardiologist wanted a copy of the findings from the genetics doctor, so I had to call them too. All of this done before 9 AM on Wednesday morning. Talk about being busy! Plus the stress of having to do this on my breaks from teaching.

My new job is going really well. I am really enjoying having the flexibility to come up with activitities to extend learning from the classroom, all the while making it fun. I really am liking the fact that the students are happy to see me when I come in the room. It makes me smile. The fourth graders are cute and adorable. The fifth graders are the same as I remember them to be from years before. They are interesting and never boring to teach. They are just reaching that age of being torn between wanting to please their teachers/parents and wanting to please their friends. Some of them do it well, while others fail miserably at balancing the two. I have adopted a few of my students, meaning I take an active interest in their personal triumphs and tribulations. I hope I can make a difference to them in some small way. I am truly enjoying the teachers I work with on a daily basis. I am getting to know teachers I never got to know before, especially the fourth grade teachers because I have never worked on that grade level prior to this year. I feel as though I am making positive contributions to my fellow teachers and to the students I teach.

My best friend moved out of town this past summer. I have really missed talking to her in the afternoons like I used to do. Her time schedule is so different from mine that I can't call her on my way home from work anymore to vent or get advice. It has been a difficult adjustment for me. We talk, but not as often as we used to. We will always be really close because we are the type of friends that no matter how much time goes by, we are as close as if we talked yesterday. She is in town this weekend and I get to see her. Hooray! I haven't looked forward to anything as much as I have looked forward to seeing her tonight.

I found out recently that my cousin Aisha is getting married! She got engaged last week. I am so happy for her. She is one of the most wonderful people I know and she deserves happiness. Since Nathan was born, she and I have become close. I have cherished every moment that we have spent together, even the time on the train with the crazy guy! She feels more like my sister than my cousin and I love her very much. I never had brothers and sisters growing up, but my cousins on my dad's side were always a part of my life. I have another cousin Nicole on my mom's side that I am close to as well. We have always lived far apart, but we are close in age and have so many things in common. I am very lucky to have family like that! I have always felt that family is among the most important things in life.

Tuesday, November 4, 2008

Grayson's Genetics appointment

Today was Grayson's genetics appointment. We are getting him checked for the hemachromatosis gene. He could very well be just a carrier, but it is better to be sure than to end up being sorry we didn't check it out sooner. The paperwork is incredible! I must have filled out 20 pages of information to take with us for the appointment.

The doctor has decided that before she draws any blood, she wants to see the results from Randy's test done at the hospital. So I had to call the doctor from then to fax over the information. She basically said that if the place that did the regular test was one she would use, she would use it rather than another place. Her thinking is that they know already the gene they found in Randy and they would better be able to find it in Grayson. So until she gets the information from the other doctor she wants to hold off. If she doesn't want to use the other lab, then we will have to go in to her office to the blood drawn there. Won't that be a happy day? So no news on that front.

However...

While they were doing the check on Grayson they found that he has a heart murmer. The first doctor who does the initial check and gets the history acted a little weird when he left the room, which was my first indication of something odd. When the main doctor came in, she began by matter-of-factly mentioning the murmur. She was a little surprised that this was the first time I had heard of this. She went on to say that many children will exhibit the symptom based on the fact that the lining of the heart walls are thinner in children than in adults. She mentioned that many times it is a false positive because they can hear the blood pumping from inside the heart. Then after listening to him herself, she mentioned that it was distinct. Just when you think you have explored the possibilities, a new one pops up. I am telling you...this family and medical issues. It is phenomenal.

So now we have to take Grayson to a pediatric cardiologist. I suppose the growth issue could be caused by a heart issue. My question is, with all the different doctors he sees, why has no one else caught this? OR is this some new development? I guess we shall see. I am not going to get upset about this until I have a reason to. I will not say that I won't WORRY or be CONCERNED, I just won't go bug crazy and start choking people because of it. Not yet anyway.

Halloween!

I just wanted to share the latest pictures of the boys. They had a great night of trick-or-treating. They both got tons of loot, and yes, it was all checked. :-)


Grayson had two costumes this year. To shorten the long story, we got the costume for Nathan in the wrong size (their fault not ours), but by the time we realized it was a few weeks later. A funny mistake, it just happened to be Grayson's size! With a dress-up birthday party and festival to do before the actual Halloween night, I decided that having two costumes for him was not a bad idea. We went and got Nathan a new costume and he was happy. So there are two pictures of Grayson with two different costumes. He looked so darn cute in the Robin costume!