Tuesday, June 17, 2008

Hemachromatosis update

Randy's doctor called last night at 9:30! He must have been on-call at the hospital or something. What a really nice guy, by the way. Anyway, he was calling to update Randy on the results of the genetic test they ran in the hospital. Apparently has has two of the markers for the disease. I included a link in a previous post, so if you are interested in checking out the information please scroll back a week or so. I will need to delve a little further with that information because it may be important. Grayson has suffered from migraines since he was two and a half or so. Daily headaches. He has been on the maximum dosage of the Verapamil for about a year. We have never been able to figure out why he has had them. Perhaps he needs to have the genetic test done also to see if he might have this same issue. Before I get all up in arms about anything though I want to talk to Randy's doctor again and find out specifics of which markers where etc. I looked up the information on the juvenile version of the hemachromatosis, but there is really not much mention of brain issues or headaches. So for now we will wait and see.

No comments: