Friday, August 1, 2008

Grayson Update

We took Grayson to the neurologist yesterday for his 6 week follow-up. The last time we were there, he was 39 inches tall and weighed 32.5 pounds. The doctor decided it was time to try something to get him to grow again so he prescribed Periactin. There is a link somewhere earlier in the blog, about 6 weeks ago, if you are interested in what it is. He first told us to give him 1/2 tsp twice a day and after a week to increase it to 1 tsp twice a day. Holy bejeezus! After about a week of the second dosing Grayson was hanging from ceiling fans and running circles around his dinner chair! I truly believe that he was burning more energy being hyper than gaining weight from eating. The pediatrician recommended (after spending a half hour with him) that we back off the medicine to only 1 tsp at bedtime. That made ALL the difference. He still talks like a tornado through a trailer park, but at least he can sit for 10 seconds before getting up and running around. In 6 weeks the child has grown 2 inches and gained 2 pounds. It's incredible! His face has filled in a little bit and he seems happier. We are going to continue with the current meds and be rechecked in 3 months. The neurologist was hoping to try and back off the Verapamil this summer, but that idea has been put on hold until he has been stable for a while. The headaches are getting less intense and shorter in duration so I think for now we are on the right path. Mimi went with us, so she got to meet the wonderful doctor. Grayson just adores him...he really is a great kids neurologist. One of my colleagues took her older daughter to him and he was really good with her too (she was 16). If you ever need a pediatric neurologist I would highly recommend ours.

No comments: